News

The Nuffield Council on Bioethics has published a bioethics briefing note on disagreements in the care and treatment of critically ill babies and young children.

The briefing note outlines the possible causes of disagreements between parents and healthcare staff, and highlights areas of action for healthcare policy-makers and NHS leaders that could help to prevent prolonged and damaging disagreements developing in future, or to resolve them more quickly.

 

Overall, they suggest the aim should be:

  • good communication between families and staff and an understanding of differing perspectives

  • appropriate involvement of parents in discussions and decisions about the care and treatment of their child

  • timely use of resolution interventions, such as mediation, in cases of disagreement

  • attention to the profound psychological effects that disagreements can have for families and staff.

     

    The briefing note is available at: http://nuffieldbioethics.org/project/disagreements-care-critically-ill-children. 

    Please do not hesitate to get in touch with Nuffield Council on Bioethics if you would like to discuss any aspects of the briefing note:

    020 7681 9622 |

     

T: +44 (0) 20 7681 9622 | E: sgriffiths@nuffieldbioethics.org



National Student Debate Final 2019

Winners! The Keele team

Winners! The team from Keele

Congratulations to the team from Keele University who took on the reigning champions Queen's University Belfast at the 2019 National Student Debate Final in Manchester on Saturday 9 March. Queen's won both the 2017 and 2018 finals & proved to be tough opponents during the 2019 final but, in the end, Keele triumphed.The motion was Law & professional guidance should abandon the 'best interests' test in favour of the 'serious harm' test when deciding whether to override the decisions of parents about treatment for their children.

Congratulations once agan to Keele and commiserations to tough opponents Queen's.

Thank you to all the teams who entered, in particular those who reached the final: Keele University - Queen's University Belfast - University of Liverpool - University of Exeter - University of Sheffield - University of Cambridge - University of Cambridge - University of Birmingham.

Thank you also to our guest speaker, Dr Joe Brierley (Consultant Paediatric Intensive Care & Director of Bioethics), Great Ormond Street Hospital who spoke to the students about Paediatric Bioethics, and also to our panel of judges: Georgia Testa, Dr Richard Knox, Dr Joe Brierley, Miss Lorraine Corfield, Dr Vivienne Crawford, Dr Simon Deery, Julie Stone, Jordan Parsons and Dr Daniel Tigard.

Details of next year's competition will be announced later this year.

Runners up Queen's Dr Joe Brierley Runners up Queen's and

Dr Joe Brierley, Great Ormond St Hospital




Financial support for carers. Had an abstract accepted for the IME Conference 2019?

If you have had an accepted accepted for the IME Conference on 24-26 June 2019 at Cardiff Metropolitan University, you might be eligible for financial support for carers.

The IME recognises that for those of you with caring responsibilities, attending events such as the IME Conference is an important part of developing and maintaining your career.  The IME also understands that attending such events can cause an additional financial burden if you need to make alternative care arrangements.

To help alleviate some of this burden, we are introducing a scheme which may entitle you to a small grant of up to £250 (maximum fund of £2,000) if you have caring responsibilities.  In order to qualify for the grant you must have an abstract accepted for the conference. *Abstract Submissions are now closed*

The grant can be used to fund additional/alternative care arrangements for your dependent* to either stay at home while you travel, or to fund travel and associated care costs allowing the dependant to travel with you.

Note:
A dependant is a partner, child or parent, or someone who lives with you as part of your family. This could be, for example, an elderly aunt or grandparent. It does not include tenants or boarders who may be living in your family home.

You may make an application for this grant if the following conditions apply:

·You have caring responsibilities and nobody else at your home can provide the care.

·No alternative source of funding is available, e.g. from the conference/training etc. organiser or by other means, such as from research grant funding.  Where relevant it is your responsibility to provide evidence that no alternative source of funding is available.

·The grant is to cover costs outside of the routine everyday care costs you normally incur.

The funds will be paid on receipt of an invoice/receipt detailing the costs incurred. Please note that any impact on benefits or HMRC impacts are the responsibility of the applicant.

Click here for an application form.

Click here for guidelines.

 



Calling Medical Undergraduates! The IME Student Council are recruiting!

Click here for details and how to apply.

Join us & help promote interest & awareness of medical ethics.

Deadline for applications: midnight, Sunday 2 June 2019



IME Student Conference 2019: Medical Ethics in a Technologically Advancing World

Click here to read a conference review, by Charlotte Galvin, intercalating medical student, Keele University and IME Student Conference Vice Chair.
 



Dr Richard Shoulder was awarded a full elective bursary 2017/18 for his project entitled 'Elective Ethical Toolkit - an essential for medical students working abroad' whilst in his final year at University of Bristol.

Richard is also the 2018 winner of The Mark Brennan Poster Prize (bursary category) for his poster of the project. Congratulations Richard!

To read Richard's elective report (which includes the Elective Ethical Toolkit), click here.



Progress Educational Trust Annual Conference - Institutional Grant Report

PET conference_2018The IME was pleased to be able to award an Institutional Grant to PET to fund the attendance of eight medical students at their annual conference Make Do or Amend: Should We Update UK Fertility and Embryo Law? on 5 December 2018.

Read their report below ...

The Progress Educational Trust (PET) is an independent registered charity founded in 1992 to advance public understanding of ethics, law and science in the fields of human genetics, assisted reproduction and embryo/stem cell research.

PET works to improve choices for people affected by infertility and genetic conditions, and to promote the responsible application of science through education and debate.

PET's discussion conference Make Do or Amend: Should We Update UK Fertility and Embryo Law?, which was held at Amnesty International in London, on 5 December 2018, explored law and regulation governing fertility treatment and embryo research.

In the PET tradition, following introductory presentations the bulk of each session's running time was devoted to soliciting questions and comments from the audience.

Conference sessions included:

The Human Fertilisation and Embryology Act: Is It Broke and Should We Fix It?

Society Marches On: Key Social Changes

Science Marches On: Key Scientific Developments

New Science, New Families, Old Law: Is the Human Fertilisation and Embryology Act Fit for Purpose?

A Patchwork of Policies: Assisted Conception and Embryo Research in Europe

The Future of Fertility Law: What Must Change and When?

How the Institute of Medical Ethics made a difference

By funding places for eight medical students to attend the conference free of charge, the Institute of Medical Ethics (IME) made the event substantially more accessible. The medical students who made use of these places, contributing to the 220-strong audience, were from the Universities of Birmingham, Sheffield and Liverpool and from Manchester Metropolitan University. One student also attended from Australia's Monash University, currently a visiting student at the Oxford Uehiro Centre for Practical Ethics.

Thanks to the IME, it was possible for these students to participate in an event whose cost would otherwise have been prohibitive – especially when combined with the cost of travel.

Furthermore, association with a body such as the IME gives an imprimatur of quality to the event. Prospective delegates who are unfamiliar with PET's work in bioethics are given confidence that the conference will be of a high standard.

Feedback from attendees:

220 people attended the PET conference, of the attendees who completed feedback forms, 100 per cent rated the conference as either excellent or good overall, and 97 per cent said they were better informed as a result of attending.

Several of the students who received sponsored places gave specific feedback:

Charlotte McDowell (University of Sheffield):

'I'm a third-year medical student planning to intercalate in medical ethics and law next year. I find the topic of surrogacy to be particularly interesting, and I went to the event in the hopes of getting a better understanding of the current ethical and legal issues. The event was very engaging, and I really enjoyed it. All of the speakers were interesting and well selected. The talks given only furthered my interest in intercalating in medical ethics and law. I also have to write an essay for my applications for intercalated degrees, and I decided as a result of the event to write about the ethical issues surrounding commercial surrogacy. I would like to thank the IME for kindly subsidising places, as I could not have attended without this.'

Lucy Benham Whyte (Manchester Metropolitan University and University Hospital Coventry):

'I am extremely grateful for the subsidised place that was available to me, since I would not have been able to afford to come to London on the student budget alone. This particular event was extremely relevant to my studies as a trainee embryologist, and I feel my level of knowledge in regard to embryo and fertility law is much more advanced as a result. I hope I will be able to attend many PET conferences in the future.'

Lydia di Stefano (Monash University):

'I found the conference really interesting and helpful to complement the biomedical perspectives I have heard about assisted reproductive technologies at medical school. I would not have been able to attend the conference without being sponsored.'

Sam Calmonson (University of Birmingham):

'I was able to attend the Progress Educational Trust conference thanks to the IME. It was fantastic opportunity to increase my knowledge about the topic. All the speakers gave an interesting insight into their views, and the short presentations helped to keep the conference moving, whilst generating debate and conversation. As a medical student, this was an interesting day away from the main course that I would highly recommend to anyone interested in ethics.'



Gemma Skilton, a final year medical student at the University of Birmingham, received an IME grant to present her paper at the 13th World Conference on Bioethics, Medical Ethics & Health Law, Jerusalem, Nov 2018

Read her report below as an example of the IME enabling students to participate in an international conference & to hear diverse views on important topics.

In November of this year, I received a conference grant from the IME that allowed me to travel to Jerusalem in order to present my research at the 13th World Conference on Bioethics, Medical Ethics and Health Law. This was a 3-day conference that took place from the 27-29th November 2018. As a medical student at the University of Birmingham I had previously completed an intercalated degree in Healthcare Ethics and Law. It was during this degree that I conducted the research which I was then able to deliver during my oral presentation at this conference. Thus, as a medical student with an intercalated degree in this field, I was incredibly excited and grateful for this opportunity not only to present my own work but also to learn from many other like-minded people presenting their own research on varied topics within the field of healthcare ethics and law.

This conference offered over 500 presentations across more than 60 topics and subtopics, with presenters coming from 63 different countries. The sheer size, variety and international nature of the conference made for an amazing and unique experience. Never before had I had the opportunity to hear from such a diverse group of people about the many different ethical and legal issues affecting them in all different parts of the world. As just one example, the ethics of psychiatric assessment to possess firearms is an ethical issue that seldom requires reflection in the UK, however the application of these issues in the USA was a novel consideration for me. Particularly poignant was the phrase coined by the presenter, a psychiatrist working in the USA, “I cannot take your guns away from you, but I can take you away from your guns”. The enriching opportunity to consider different international perspectives on medical ethics and law served to further my already great interest in this field. Not only this, the conference also presented the opportunity to consider ethical issues within other fields than medical ethics such as immigration ethics and the ethical responsibilities within migration policies.

 

As outlined, this conference really opened my eyes to a diverse range of ethical issues which I had not previously reflected upon. However, given that I was also there to present my own research, my experience of the conference in relation to this cannot go without reflection. The topic of my research was based upon the informed consent process for the implantation of implantable cardioverter defibrillators (ICDs) and whether discussing deactivation ought to make up a part of this. Consequently, I found several of the informed consent themed sessions incredibly engaging and thought provoking in relation to the background of my own research. For example, one delegate delivered her legal analysis of “the hidden paternalism in Montgomery” which was particularly interesting to reflect upon given that an analysis of UK case law on informed consent made up a section of my own research. I was very lucky to have been accepted not only to give an oral presentation but also to co-chair the session in which I was presenting, both of which were new experiences to me. I was one of five presenters in my session themed around informed consent. Two delegates, both from Israel, presented on the topic of the readability standards of informed consent and health literacy level. Another delegate, from South Africa, presented his research regarding informed consent for Biobank research. Finally, the fourth delegate, also from University of Birmingham, presented the ethical issues around gaining informed consent for complex procedures. This experience has been valuable firstly, in assisting the development of my presentation skills. Secondly, in allowing me to share my research with international experts and to hear about their research in turn, using this exposure to further refine my ideas and ethical understanding of the different concepts and issues around informed consent.

The sheer size and variety of this conference made for a truly unforgettable experience. Whilst at times its size and diversity felt a little overwhelming, this was only because there were so many talks to visit that one wished that they could somehow be in several places at once! It was a real inspiration and privilege to be amongst such a wide array of people all so passionate about medical ethics and law and I would thoroughly recommend this conference to all medical students with such an interest like myself. I am incredibly grateful to the IME for the support they have given me which allowed me to do this.

 

 

 



Sam Calmonson, a final year medical student at University of Birmingham, received an IME conference grant to give an oral presentation at the 13th World Conference on Bioethics, Medical Ethics & Health Law, Jerusalem, November 2018. Read his report below

Thanks to the Institute of Medical Ethics Conference Grant programme, I had the opportunity to attend the 13th World Conference on Bioethics, Medical Ethics and Health Law, organised by the UNESCO Chair in Bioethics. The conference took place in the Ramada Hotel in Jerusalem and ran across three days, with over 800 participants discussing more than 60 topics in bioethics and law.

Each day was split into sessions, with the vast majority of each sessions having five 15 minute presentations under a common theme, leaving a short amount of time for general questions at the end. Some operated as a round table discussion between experts in a topic, followed by a generalised discussion involving the audience afterward. Outside these scheduled hours, the set-up of the hotel allowed for fruitful discussion about the ethical topics, as well as an opportunity to ask more detailed questions of the presenters and their work. This is something with which I actively engaged, finding their comments on my own work very helpful. The sheer variety of opportunities to learn about new and developing research was astounding.

Of the topics available, I particularly enjoyed session relating to the ethics of informed consent, ethics in Jewish law, ethical decision-making in psychiatric patients and the other presentations in my own session on 'Death and Dying: Life's Beginning'. In the session about informed consent, there was research published by surgeons describing the ethical implications of consenting patients to surgery carried out by trainees and the degree to which consent for this needed to be gained. This sparked debate about the 'minimally good samaritan' and whether there exists a collective societal obligation to be treated by trainee doctors for the good of the society. This was followed by a philosopher's approach to using the informed consent principle as an argument for euthanasia. The session about Jewish law discussed arguments about abortion based upon the debate between two famous biblical scholars, as well as looking at the religious interpretations about genome editing - something important for future healthcare practices in Israel. After my own presentation about the ethics of withholding resuscitation from extremely premature neonates, there was a presentation about extending Canada's Medical Assistance in Dying (MAiD) programme to those who are under 18 years of age, using case studies of teenage cancer patients who have reached palliative stages but not the age above which MAiD was available. This extended into a wider debate about assisted dying in general. Similarly, a psychiatrist from Harvard Medical School talked the topic of assisted dying in psychiatry the following morning. These topics tended to generate the most conversation during the questions and answer sessions. Another presentation that I found particularly interesting was the question of administering contraception to migrants in expectation of rape. The question posed by the presenter was whether this was ethically justified by preventing pregnancy or complicit by not preventing rape. The consequentialist argument found that contraception was a net good and therefore ethical, but the topic raised the wider topic of migrants from other countries, something that has taken a back seat in the wider news today.

I thoroughly enjoyed the opportunity to present my own research to an audience of about 50 people. It was a new experience, involving dealing with people who vehemently disagreed with my content during my presentation as well as those who actively engaged with my work and sought me out after to continue the discussion. I have been able improve my own work and find helpful people to consult in the future. None of this could have been possible with the generous grant from the Institute of Medical Ethics and it is to them that I am most grateful for allowing me this enriching opportunity.